Caregiver Help

The following links are to sites outside of Independence. These links are provided for your convenience. Independence is not responsible for the availability or content of these external sites, nor does Independence endorse, warrant or guarantee the products, services or information described or offered at these other Internet sites.

general Caregiver Resources

Family Caregiver Alliance

FCA has developed a wide array of services and publications based on caregiver needs. The FCA website provides information and advice for caregivers, as well as numerous fact sheets.

Caregiver Action Network

The NFCA website offers tip sheets, how-to guides, a peer bulletin board and other resources for family caregivers.

National Partnership for Women & Families provides family and professional caregivers with timely information through News Updates, a Blog, an Events Calendar and a monthly advice column. provides family and professional caregivers with timely information through News Updates, a Blog, an Events Calendar and a monthly advice column.

well spouse association

WSA gives support to wives, husbands, and partners of the chronically ill and/or disabled. They offer an online forum, local Well Spouse support groups, a mentorship program and other resources.

Children of aging parents

CAPS provides caregivers of the elderly or chronically ill with reliable information, referrals and support, including an online Caregiver Guide.

Senior Living Map

Senior Living Map is a free website to help seniors and their caregivers choose between different living options.

National Organization For Empowering Caregivers

Provides information, news, message boards/forums and other resources for caregivers.

An online community of caregivers communicating through chat rooms, instant messaging, discussion conferences, an event calendar and member blogs.

Caregiver’s Home Companion

A website and monthly newsletter providing useful tips, advice, information and resources to the family caregiver of the elderly.

Caring Today

A website and magazine providing practical advice for the family caregiver.

Today’s Caregiver Magazine

National magazine dedicated to caregivers. The website offers topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver Magazine, chatrooms and an online store.

Resources for Seniors

National Association of Working Seniors

NAWS is dedicated to addressing the needs and interests of working people age 50 and older. The "Family Matters" section of the website includes articles on caring for an aging parent.

American Association of Retired Persons

Through its website AARP offers resources on aging and retirement; discounts on drugs, travel; insurance, financial services, and a wide range of unique benefits and products for members. Articles and resources on caregiving can be found in the "Family, Home and Legal" section of the website.

The Eldercare Locator

The Eldercare Locator, a public service of the U.S. Administration on Aging, connects older Americans and their caregivers with sources of information on senior services. The service links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.

Elder Issues/Life Ledger

Elder Issues offers several services, including their Life Ledger online record keeping service. Life Ledger allows users to create a personal record of medical and financial information. The user can grant family members, doctors or others access to the information in the event of an emergency.

Alzheimer’s Disease

Alzheimer’s Foundation of America

AFA provides a network of websites offering information on Alzheimer's Disease and dementia, including resources for family and professional caregivers.

Ostomy and Incontinence

National Association for Continence

The NAFC website provides information on types of incontinence and treatment options. The online store offers publications for people living with incontinence, theircaregivers and healthcare professionals.

The Simon Foundation for Continence

Provides information and educational materials about incontinence prevention and solutions.

The Incontinence Support Center

The Incontinence Support Center is dedicated to providing comprehensive and accurate information as well as offering support about incontinence in all it's forms. The website creates a sense of community through a forum and live chat features.

Wound Care, Ostomy & Continence Nurses Society

WOCN is a professional, international nursing society of nurse professionals who are experts in the care of patients with wound, ostomy and continence problems. The WOCN website provides patient guides and a WOC Nurse Referral tool for locating WOC nurses in your state.

United Ostomy Associations of America

The UOAA was created to fill the void left by the dissolution of the United Ostomy Association. The UOAA website provides information on local support groups, as well as a discussion board and chat room for people who have, or will have, an ostomy or other intestinal or urinary diversion.

Crohn’s Colitis Foundation of America

The CCFA website provides information on living with IBD, including resources for kids and teens. The website also enables users to find local chapters, clinical trials and physicians.


National Disability Rights Network

NDRN is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the P&A/CAP network is the largest provider of legally based advocacyservices to people with disabilities in the United States.

National Organization on Disability

The N.O.D. website provides disability-related news, informationand resources.

Bubel/Aiken Foundation

The Bubel/Aiken Foundation provides services and financial assistance to facilitate the full integration of children with disabilities into the life environment of those without.

Paralyzed Veterans of America

The PVA website provides information and resources for veterans of the armed forces who have experienced spinal cord injury or dysfunction, their spouses and the professionals who care for them.

The Christopher and dan Reeve Paralysis Resource Center (PRC)

PRC provides a comprehensive, national source of information for people living with spinal cord injury, paralysis and all mobility related disabilities.

Spinda Bilfilda Association of America

The mission of SBAA is to promote the prevention of spina bifida and to enhance the lives of all affected.

National Spinal Cord Injury Association

Dedicated to improving the quality of life for Americans living with the results of spinal cord injury and disease (SCI/D) and their families.


National Stroke Association

The NSA website offers information for medical professionals, stroke survivors, caregivers and families.

American Stroke Association (division of the American Heart Association)

The ASA provides information about strokes, stroke prevention and life after stroke, as well as resources for healthcare professionals.

The Stroke Networks

An online stroke support organization providing stroke support and information.

SAFE (Stroke Awareness For Everyone)

An international Internet-centered coalition of stroke survivors and their families, in addition to doctors, nurses and therapists involved with stroke.

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